Having Some Fun While in Limbo

Tuesday, April 14, 2009 - 1:47 am · 9 Comments

The past two weeks have been stable on the medical front and that has been a very welcome sign. There haven’t been any unexpected surprises in terms of Michelle’s counts. It’s been over 6 weeks since Michelle relapsed, and the odds were that these cancerous cells would multiply rapidly. I’ll give you an example of how quickly moving or “acute” Michelle’s AML is. Prior to Michelle’s 1st relapse last April, Michelle had a quarterly checkup and blood draw on a Thursday, and everything checked out okay. By Sunday, Michelle started to get pounding headaches that indicated she had relapsed. So we are definitely concerned with Michelle’s AML proliferating rapidly.

However, blast cells have not spilled over into her bloodstream which means there is something working in Michelle’s favor that is presumably fighting back her cancer. As mentioned in previous posts, Michelle is now completely off of her immuno-suppressants which, in theory, should enable her donor cells / immune system to attack leukemia cells in her body. We will know for sure what’s going after Michelle’s bone marrow biopsy on Monday, April 27th.

In addition to this, we’ve started seeing an Asian herbalist with the hope of boosting Michelle’s immune system. Every night, we heat up a concoction of herbs in water for 2 hours in a special claypot, and Michelle has to stomach the drink that pours out. Actually, Michelle has the bad habit of determining ahead of time whether she will like any food or drink, so I thought she was being a drama queen when she made faces and sounds as she drank her medicine. I tried a sip of her drink and can attest that it’s pretty bad.

Historically, we’ve resisted going down the path of Eastern medicine. Not because we don’t think there is value to herbs that have been recommended to us. It’s been more because we have had no way of determining who to trust and what to take. More importantly, we didn’t want to interfere with any medications, especially chemotherapy, that Michelle was on. In fact, we were given specific instructions to not take any herbal medicine in Seattle. Since Michelle is not currently on chemotherapy, we felt that it was worth a shot. We’re not sure if it’s a coincidence, but Michelle started feeling a lot better pretty much as soon as she started taking her herbal medicine. Her energy has been a lot better and her nausea has subsided quite a bit. She still has some recurring headaches and some generally bad days, but these are less frequent.

We’ll probably never really know whether it’s the Chinese herbs truly working or it’s just the placebo effect. At this point though, I’m not going to question the source of these positive outcomes. Instead, we are focusing on taking advantage of the days Michelle does have energy to go out and have some fun. On top of eating out a lot and getting a very welcome visit from a good friend, here are some of the things we’ve done the past couple of weeks…

Confused at the Mystery Spot:

Stuffing our faces with funnel cake in Santa Cruz:

Going to the shooting range:

Feeling like kids at the Jelly Belly factory:

Celebrating Michelle’s Dad’s Birthday with the family:

Celebrating Mabel’s heritage at the Cherry Blossom Festival:

Truly embracing Mabel’s heritage by taking ridiculous Japanese photo booth sticky pictures:

And of course, obsessing over our lil Marshawn:

Yes, he really fell asleep like this.

Tags: Medical Update

9 responses so far ↓

  • 1 HM // Apr 14, 2009 at 7:48 am

    LOOK AT YOU, MARSHAWN!

  • 2 Pim // Apr 14, 2009 at 8:06 am

    Hey guys! Looks like you all have had a very interesting and fun-filled several weeks :) Glad to see that Michelle is up to getting out and doing stuff! Happy [Thai] New Year girlie! Hang in there – Gary and I think about you guys and pray for you every single day :)

    Love,
    Pim & Gary

  • 3 John Arbour // Apr 14, 2009 at 8:49 am

    fighting on…i like it.

    hope the herbs start to taste better…but happier still that they are making you feel better…

    who doesn’t like a little herb in their life! ;)

  • 4 Ed Collins // Apr 14, 2009 at 3:37 pm

    What great pictures:) Our little Yorkie “Sassy Sarah” is also sleeping right now, and snoring too:) God Bless:):):)

  • 5 Ann Gregory // Apr 14, 2009 at 5:44 pm

    Michelle,

    How is it that you manage to look so darn cute through out all of this? I’m glad that you’re having more good days than bad and that you’re getting out there and having fun. Stay safe and keep us updated on what’s going on.

  • 6 Marcia // Apr 14, 2009 at 7:42 pm

    Michelle- I am so happy that you are feeling better!! I think about you everyday, keep on pushing girl- you are gonna make it… cheers to even better days ahead! Always praying for you.

  • 7 Myling // Apr 15, 2009 at 4:15 pm

    Hi Michelle! YAY!!! I’m so happy that you’re doing better and having fun with that extra boost of energy.

  • 8 Carol // Apr 15, 2009 at 9:25 pm

    Hi Michelle! It looks like you had a lot of fun in your pictures, which I love to see. :) The pic of Marshawn is too cute! I hope the herbs become more palatable for ya and keep giving you energy to be out and about.

  • 9 Jenny // Apr 19, 2009 at 8:35 am

    Yayyyy! I’m happy that you guys have been able to do some fun things. I LOVE the mystery spot, and that picture of Marshawn is freakin’ cute. Much love for y’all!

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